Olindah Silaule
University of Cape Town, South Africa
Abstract
Title: Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review
There is considerable evidence of the burden of care encountered by informal caregivers of persons with severe mental disorders in low- and middle-income countries. This scoping review aims to identify and describe the extent and type of evidence on the existing strategies for alleviating the burden of care among informal caregivers of persons with severe mental disorders in low- and middle income countries. A systematic literature search was completed following the Joanna Briggs Institute methodology for scoping reviews. The participants, concept, and context framework was used to guide the search for literature sources across 5 databases: PubMed, MEDLINE, CINAHL, and PsycINFO for published literature and ProQuest for unpublished literature. This review included studies that reported on evaluated or recommended caregiver interventions and support strategies in low- and middle-income countries. The search was limited to studies conducted between 2001 and 2021, and only papers written in English were considered for inclusion. Using the Covidence software, 2 reviewers independently screened the papers, applied the inclusion and exclusion criteria. The relevant studies and reported outcomes were summarized, organized, and analyzed descriptively using numeric summary analysis and deductive content analysis. Of the 18,342 studies identified, 44 (0.24%) met the inclusion criteria. The included studies were from 16 low- and middle income countries in Asia, Africa, Europe, and South and North America. The identified strategies were grouped into 2 categories: implemented and recommended intervention strategies. Identified strategies included community-based interventions, psychoeducation interventions, support groups, cognitive behavioral therapy, spirituality-based interventions, smartphone-based interventions. and In addition, mindfulness and empowerment, collaborative interventions, standard care, financial and social support, counseling, occupation-based interventions, policy and legislature, and access to mental health care were identified. The findings revealed that psychoeducational interventions were the most preferred strategy for alleviating burden, however their benefits were short lived when compared with peer-led support groups.
Biography
Olindah is a senior lecturer at the Division of Occupational Therapy, Department of Health and Rehabilitation Sciences, University of Cape Town. She currently lectures an undergraduate course in mental health and a postgraduate course in occupational therapy within primary healthcare settings. She is responsible for supervising undergraduate and postgraduate research projects. Her research interests are on improving the quality and efficiency of mental health services in low-resource settings and her PhD project focused on developing strategies for supporting informal caregivers of persons with severe mental disorders in rural South Africa.